When I was twelve, our tail, small-town doctor diagnosed me with mitral valve prolapse (MVP), although he never explains the disease. During my youth I had strange symptoms other girls do not experience fainting, fatigue, and the eyes burn, as if wind blew steadily in them. My mother noticed and trotted forward to the horrible, swearing physician.
In his office, he scolded me in his nasal voice, "There's not a damn, what's wrong with you. Almighty God, not give your poor mother a little more thought about to make. Think of it, rather than selfish. What you need is a psychiatrist. "I see his face redden with anger.
Didn 't remember it? Earlier, after his MVP diagnosis, he had trimmed sport with the use of my arms, which is not the way MVP is now handled. According to him, in two years I would be in order. Actually, I felt better before the sport limit. Without sport for two years that I had lost muscle strength and tone.
MITRAL VALVE PROLAPSE
MVP is the most common inherited heart problem in the United States. But it is with the National Organization of Rare Disorders (NORD), because the disease is not fully understood and accepted by most doctors. While the statistics according to the sources, the estimated percentage have this issue not less than thirty percent in this country. According to a survey in the late 80s, three times more women than MVP men.
The heart has four valves inside to pump blood into and out the aorta, the mitral, tricuspid and the lungs. The mitral acts as a door between the left atrium and left ventricle in the heart. If the lower part of a normal heart, the mitral closed and prevent blood leakage into the upper chamber. With MVP, the valve balloon out of SHAPE. A doctor hears this through a stethoscope like a mouse click. If the valve shifts enough, it can take a certain amount of blood to flow back into the upper chamber, and the doctor hears a murmur.
Have you hear your own heart through a stethoscope? Have you heard the click or the noise? Ask your doctor to allow you to do this. It is important that you know what your heart sound. Of course, a few clicks and murmurs is difficult even for a cardiologist to see. But give it a try. If you squat, the hardest position on the heart, you hear it. A woman chose their physician, depending on whether the doctor could hear murmur.
However this structural defect is not what usually causes the multitude of symptoms. Most people have MVP healthy hearts.
MITRAL VALVE prolapse syndrome with DYSAUTONOMIA
A syndrome is a collection of symptoms that have more than one cause, whereas a disease has a single cause. MVPs /D has a pattern of symptoms and signs. As doctors and researchers understand the symptoms reflect a failure of control mechanisms, especially on the nervous system. The more they learn more about the disease, the more likely they will be able to find a single cause and convert MVPs /D /A disease status.
The nervous system is divided into two parts: voluntary and involuntary. The involuntary nervous system, also known as the autonomic nervous system (ANS), is more complex and controls the most body functions such as body temperature, sweating, blood pressure, heart rate, salivation, pupil dilation and contraction, sleep-awake balance, intestinal function, digestion, and many others . This system has two major divisions: sympathetic to corrupt the system and the parasympathetic, which slows the system.
The doctors combine some MVP symptoms of ANS, an imbalance known as dysautonomia or autonomous (automatic) nervous system dysfunction. Therefore, if the MVP patient symptoms associated with the ANS, the doctors refer to the disease as mitral valve prolapse syndrome with dysautonomia, the most common type of dysautonomia.
The central problem of MVPs /D is the body of the response to adrenaline ebermaigen and adrenaline - as hormones. (Hormones and nerves serve as a control systems in the body.) Most MVPs /D patients have a bit too much norepinephrine, a related hormone. Most of the symptoms come from different institutions over-reaction capability to even normal amounts of adrenaline-like hormones.
Thus, you can see it would be best for MVPs /D patients to minimize the release of adrenalin in their blood streams . Of course, stimulants of any kind-caffeine, sugar, alcohol, chocolate, aspartame, NutraSweet, Splenda, monosodium glutamate and some over-the-counter drugs, those containing caffeine, adrenaline, ephedrine and pseudoephedrine, should be eliminated from your diet . Stimulants can people and activities. Movies, at times, can stimulate my system, even talking.
Check with your doctor before a therapist uses electricity, which can trigger symptoms. Patients should only maig sun and heat and gradually Progress on condition their bodies for the exercise. This warning is sustained a high blood volume. An increased blood volume is an adrenaline rush is less likely. The patients also have control over their emotional reactions to stress situations. Yeah, right, this is a trick in itself.
Debbie Petersen, nor their symptoms under control, urges dysautonomia a part of daily living hell. "Right now it's just trial and error every day."
'I was so happy to know there is a name for what is partly wrong with me: dysautonomia, "wrote Rita McNeil." Most people have never heard of, let alone know what it means. "
" The disease takes a significant toll on the lives of and working ability, "said Linda Smith of the National Dysautonomia Research Foundation (NDRF) .
Dr. David HP Streeten, a research pioneer of orthostatic intolerance (OI), amounts, the impact of dysautonomia in a person's life:" Even if we are not constantly aware of the activity of the autonomic nervous system, as we are of unusual sensory and motor events, the normal functioning of the autonomic nervous system, day and night, of heart - heart-beat to beat, plays a largely unconscious, but important role in our Livelihood. It is not surprising therefore that autonomous anomalies, if they are usually more difficult to recognize as a strong pain, sensory loss or paralysis of the body, may even graere importance in the quality problems and even threaten the Continuation of life. "
SPACE SHUTTLE COLUMBIA
The astronauts experience similar problems if they come from the earth and land from space. Dr. Andrew Gaffney, cardiologist and astronaut, served as a payload specialist for Spacelab-1 Sciences as part of a Space Shuttle Columbia mission in the early 90s to study the astronauts, "as our problems.
Understanding MVPs /D problems helped him work to understand why astronauts experience symptoms such as dizziness and fainting when they stand. In the first part of the space, Dr. Gaffney flew with a catheter inserted into his arm vein to collect the blood pressure to his heart. Within a few hours after lift - off, his blood pressure and blood volume decreased remarkably, according to Popular Science Magazine, March, 1993.
"As we clarify that the data", Dr.. Gaffney, said: "We are learning much more about where the blood goes , Where it is stored in relation to the venous system, and the relationship between the adrenaline and the blood volume. "
Dr. Gaffney, head of clinical cardiology at Vanderbilt University School of Medicine, Memphis, TN, describes what he knows MVPs /D: "It is a primary abnormality Autonomic clay, so that these people tend to Gefae constricted." This leads to the narrowing of blood volume shrinkage. The lower volume feeds back and causing more and the narrowing to a vicious cycle That .
cycle contributes to symptoms such as fatigue. "We all know, the anemic patients have fatigue, and everyone understands that," said Dr. Gaffney. "Well, is it perhaps a little difficult to understand (MVPs /D) . You can have the right amount of blood volume, but if you do not have enough red blood cells in it, then you get tired, because you do not provide oxygen. That's anemia. You can have the right concentration of red blood cells, so that you are not anemic, but if you do not have enough blood, then it is the same problem. Absolute number of red blood cells, the oxygen that is what determines whether you can exercise more. "
BLOOD VOLUME
" blood volume is crucial to prevent the symptoms from, "said Susan Elliott, physics, taught before MVPs /D symptoms changed their lives." As blood volume is low, it tends to solve a chain of Events, the reactive lead to things such as tachycardia, feeling too hot or too cold. "
Even a slight imbalance in the ANS can lead to low blood volume in MVP patients. Up to twenty - five percent lower. The thirst - Not turn signal so that the blood volume low.
It is very important for people with MVPs /D to drink fluids at least 70 ounces a day more, if the temperature is higher. A good way to remember the amount, if the temperature is higher than 70, drinking the same number of ounces to the temperature in degrees. For example, if, 86 degrees, 86 oz drink liquids. A simple way to achieve this is to create a water bottle with you and try to drink eight Ounces every hour. And so it is really fun, sing the melody to "Pump up the Volume" by M/A/R/R/S.
Susan also noted that more water, the lower their MVPs symptoms such as turning the leg muscles. Also regime were in their potassium, zinc and magnesium, minerals help his heart and muscle function and energy metabolism.
Fluids "FAKE from your body," says Susan, making it appear to have higher blood volume. drinks a gallon of water per day, always keep the Remember to salt the water or eat something salty with him. The salt helps water and valuable nutrients such as potassium. Another idea is to include fluids with salt present such as sports drinks or soups. But patients with hypertension (high blood pressure) should consult their physician first.
VERTICAL VS HORIZONTAL
When a MVPs /D person, it can immediately symptoms such as tachycardia or heart pounding. "If you lie flat, this could produce much blood on his head and heart too quickly," Susan said.
While we are vertically, the blood circulates throughout the body with less volume than people without MVP. If our body horizontal, the blood flooding the head and the heart chambers, causing the symptoms until the pumping adjusts.
To offset, some people sleep in a slight slope as in a deck chair. To create their inclination, Susan, a board under her head. Pat Conrad sleeps on two pillows. Then they palpitations "not so extreme. "When the heart pain continues, it highlights the Fae. My husband and I with two thick volumes Encyclopedia that help me and his gastrointestinal reflux disease (GERD) .
orthostatic intolerance (OI)
People their ability , For granted. OI patients. Every day they struggle with the symptoms brought on by the vertical position. On standing, a person with orthostatic hypotension, another word for OI, could experience lightheadedness, dizziness, palpitations (Throbbing or serious Strokes), tremulousness, visual changes, feeling a stuffed head, ears ringing or sums, fainting, and poor concentration, because their blood pressure has dropped suddenly. About half a million Americans have OI, according to the national Dysautonomia Research Foundation.
Being upright produces blood - Pooling in the abdomen and limbs, the blood is no longer available to the upper body. With an effective ANS, the body quickly offset by an increase in heart rate and other cardiac-OI output.
When the person, their blood volume reduced their Blutgef ae lose a ebermaiges amount of plasma, and pour out their kidney patients salt.
Some fatigue, tachycardia (abnormally fast heart beats), shortness of breath, which is considered sympathontonic or hyperadrenergic orthostatic hypotension, because the sympathetic part of the ANS each increases.
Not Patient has all these anomalies. OI Most patients have a mild case of can improve on for weeks or months. Most are finally free from their symptoms.
However in patients with severe symptoms or with a sudden change ANS as director-actor Christopher Reeves with its experienced, the recovery may never come.
A few other names for OI are as follows:
orthostatic tachycardia syndrome
postural orthostatic tachycardia syndrome (POTS)
hyperadrenergic posture hypotension
partial dysautonomia
sympathotonic orthostatic hypotension
hyperadrenergic orthostatic hypotension
mitral valve prolapse syndrome
SUPPLEMENTAL HELP
CALCIUM
Calcium, the body most common mineral, is located mostly in the bones and teeth, because its function is to build and maintain bones and teeth. It is also essential for healthy blood, regelmaigen heartbeat, nerve and the ordnungsgemae transfer. Calcium is good for heart - Vascular diseases. Cases of calcium deficiency have provoked heart rhythm disturbances, slow pulse rates and irritability ebermaige the nerves and muscles.
The best supplementary source lies in Calcium lactate gluconate or because these derivatives are natural and easier to absorb. Foods rich of calcium are dairy products, green leafy vegetables, shellfish, and minerals necessary molasses.
MAGNESIUM
This life within the body cells to activate enzymes for the metabolism of carbohydrates and amino acids. It helps in the regulation of the acid-alkali balance and to promote the absorption and metabolism of other minerals and vitamins. With almost 70 percent of which is located in the bone, while magnesium aid bone growth, is crucial for a ordnungsgemae nerves, muscles, heart and functions, helps regulate body temperature and blood sugar levels for energy. magnesium is alkaline, so it should not, but after meals can be used in place of antacids .
this mineral may help prevent, heart attacks and depression. It is beneficial for neuromuscular disorders, nervousness and sensitivity to noise. In contrast to the old sayings, magnesium helps form the hard enamel that resists decay, not calcium.
Large quantities of magnesium can be toxic if the calcium and phosphorus is low is high. magnesium loss increases with the use of diuretics and alcohol. Foods rich in minerals These seafood, whole grains, dark green vegetables, molasses, and nuts.
POTASSIUM
Elaine Hansen had spells of irregular heart beats that would last up to twelve hours, often during the night. She was very tired afterwards. Her family said the doctor was low potassium This .
essential mineral works with sodium to help normalize the heartbeat. If you are prone to palpitations, you might feel if you are in the low-normal range for serum potassium. If they come, try it with orange juice drink to go away.
Together palpitations, potassium and sodium the body regulates the water balance, meaning they distribute the fluids in the cells' walls. equalize the acid-alkali factor to assist in muscle contraction and expansion and nerve stimulation. With phosphorus, potassium sends oxygen to the brain and regulates calcium neuromuscular activity. This is a handy little for our bodies.
However mineral, potassium and sodium must be balanced ebermaige exhaustion or salt is potassium. eberm aigen alcohol and sugar can contribute to the depletion of both potassium and magnesium. Potassium excreted through sweating and urination. Foods with potassium are lean meat, whole grains, vegetables, dried fruits, legumes and sunflower seeds. A high potassium level can and can be fatal in kidney failure.
SODIUM
Half our body sodium found in the extra-cellular fluids such as the Blutgefae, arteries, veins and capillaries. As I wrote in the last section, sodium works in conjunction with potassium. It keeps other minerals Blood soluble, so that they are not deposits into the bloodstream. Foods that naturally rich in sodium are seafood, celery, milk products, salt, and baking powder.
WATER
In elementary school, we have learned, water is two-thirds of body weight, so that we know That our body is the most important nutrient. It makes about 70 percent of our weight. We can live longer without food than we can without water. Water is necessary for everything from maintaining the body temperature at which our waste. For MVPs /D, water is crucial to a high blood volume.
My neighbouring young Ryan had a problem with constipation. His parents used all the usual remedies. Still, Ryan could wait as long as five days without a bowel movement.
Finally his doctor asked how He drank lots of water daily. When his mother replied the doctor said, that was enough for some, but some people double the points of water at different rates. faster the absorption, the chair firmer. Presumably then (if no other variants), the more Drinks water, the smoother the stools.
I never as water as a response to my irritable bowel syndrome (IBS). I had looked assured, I drank enough water. Besides, my chair in the rule change when I become overloaded and my other symptoms, such as For example, migraines and fatigue from hiding.
When I started to drink my gallon (and that takes discipline!), my chair to normal soft consistency without my other MVPs /D. Since I already had on the regime gallons, my chair was firm or soft, never irritably hard.
Of course, other factors can be involved, as the food we eat and much more. chocolate and red meat harden chair. ... I discovered for me ... the water helped my IBS.
Someone commented to drink too much water. In May 2000, issue of Town and Country magazine, Diane Quagliani, a registered dietitian and spokesperson for the American Dietetic Association, was quoted: "Everyone loses about ten cups of water daily, it is important to drink about eight cups eight ounces of fluid and the rest is done by water in food and water makes the body in metabolism. The graer, more active and more overheated you are, the more fluid you should in. Taking on too much (water) is not very likely, unless it is gallons per day, and the danger would be grate rinsing too many electrolytes. Healthy kidneys can also be used with most consumption. "
Others complained they would have to run to the potty more frequently. In hot humid weather, the average person should eliminate urine every two hours if the person who drinks enough water to cover sweating, in my opinion, family physician.
When I tried the gallons experiment, a few days, I met the toilet plunger more than the norm. But on another day, I would not. What is normal anyway? The question should be "What is best for your body?"
The Town and Country Article Writer, ILA Stranger, wrote that it made sense that drinking enough water is bound so that we avoid dehydration which can happen as easily in the overheated rooms of midwinter as in the summer sun and make us " Look and Feel "alive and well. "
Each day I grave per gallon jug of spring water or fill one gallons jug and set it on the counter remind me try to drink more water. Not only for my IBS, but for my blood volume, blood pressure and many other tasks my body constantly. I have noticed in winter lukewarm water is easier. ice is a blow to the neck, sometimes even in hot weather.
Some people prefer to drink mineral water instead of tap water. Other use of well water. Neither should be relied upon a person source of minerals. Distilled water, the water was boiled with all harmful or beneficial minerals eliminated. fruits and vegetables are good food sources for chemically pure water, which is 100 percent pure hydrogen and oxygen. The use of these are individual choice.
The Environmental Protection Agency's Hotline is 1-800-426-4791; their site www.epa.gov /safewater. The Natural Resources Defense Council website (www.nrdc.org) contains in its archives the results of a recent four-year study in bottled water. The author of the summary of the results is Dr. Andrew Weil on the website www.pathfinder.com/drweil.
ANTIBIOTICS
Before any invasive procedures, MVPs /D patients with valve leakage should antibiotics to prevent bacterial infections, the in their valve. such as dental work, piercing, tattoo, and surgery. A few years ago, doctors recommended antibiotics MVP for all patients. Now only those with specific regurgitation (leakage) are invited to do this, and the dosage was Reduction only in the procedure.
For other operations and procedures, you can contact your physician or the MVP clinics.
RESEARCH IN MVPS/D
Dr. Al Davies, Associate Professor of Medicine at the Baylor College of Medicine in Houston, the MVPs /D Research by chemical reactions between adrenaline and proteins.
The several important proteins are located in the vicinity of the lining membrane of a cell of a body organ. Grater three proteins of importance are: the receptor on the cell surface, a G-protein is located inwards, and an enzyme called adenylyl cyclase on the inside of the cell membrane surface.
Normally, adrenaline attaches to the receptor protein that is combined with the G-protein. (full name is stimulating guanine nucleotide regulatory protein.) Once these are activated, contact they stick to the enzyme which causes internal measures such as increasing blood pressure or increased heart rate.
Dr. Davies and his colleagues have shown that the MVPs /D patients abnormally increased sensitivity to adrenaline is due to an overly active, abnormal G - protein.
The opportunities to the question "Why?" are numerous. And there are many steps before a detailed response and treatment. The researchers thought this could be due to an abnormal gene, because the disease is hereditary. However, their studies show that the gene is normal.
To MVPs /D patients, this finding leads hope, because the matter is not as simple as a bad genes passed on by our grandfather. something happens to the protein the gene makes and before Adrenaline activated it.
Editor the November, 1998, special American Journal of Medical Sciences in addition OI, Dr. David Robertson has the theme "epidemic of Orthostatic Tachycardia and Orthostatic intolerance." Dr. Robinson writes that many centres actively pursue research OI and expect rapid improvements in diagnosis and therapy. The director of the Clinical Research Center at Vanderbilt University, Nashville, he adds, "A seemingly healthy 20-year-old woman with dizziness, palpitations, fatigue, and is certainly not more than transfer a psychosomatic illness! "Well, maybe not in Nashville. In general, tend the table test is used to diagnose a dysautonomia.
MANY doctor ATTITUDES
My former country doctor may sound old-fashioned and something of the past, but we MVPs /D know his attitude to Its most of the doctors we meet today. One of the tough obstacles, we must find is about a knowledgeable, most people physician.
For care, diabetes, cancer or even strange diseases, they can contact a doctor, and within less they visited their illness diagnosed. They feel from the time they give the doctor with the office.
We MVPs /D are not believed. We have our own research disease, date on the latest drug used, on our literature disease indicate that the doctor knows, and then the doctor will probably not consider our legitimate illness or treatment of us. It's just crazy, if you think about it, how much proof must be a doctor? Why can not they not keep informed about MVPs /D, where a fifth of the nation and possibly symptomatic MVP?
Education and research are the key to solving the MVPs /D puzzle in our body. This is always hope. miles and miles of hope!
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�2008 Carol Hegberg. In twenty years, the medical community has come a long way to acknowledge and understand MVPS/D. Carol Hegberg has been a MVPS/D pioneer during those twenty years with over 30 symptoms. More sufferers continue to contact her to talk, to find another fellow patient, and to learn what they can do to live a normal life again.
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